osteogenesis
imperfecta: dispoussr!
The report on work of site Nostiog
For two years and five months
in the Internet there is site Nostiog. This site unites
people with imperfect osteogenesis who live in
25 people decided to register
the visiting on the site. About 10 people have remained, figuratively speaking,
in a shadow, but with pleasure read materials of the site.
15 articles were collected
from bowels of the Internet about people with imperfect osteogenesis.
Including, Anton Borissov lodging in
the USA, who gave his kind consent to the publication of pages of his
autobiographical book which had not issued yet that time.
One young woman required an
own computer to have constant access in the Internet and to find good work.
People incorporated Nostiog helped her in it. We hope
that in the future she will not leave us.
Site Nostiog
organized two types of dialogue which were waited by our visitors: the Chat and
the Forum. Unfortunately, this opportunity operatively to exchange the opinion
was taken by a very poor amount of people For today the Chat is closed.
Site Nostiog
offered the visitors to participate in the project of the European organization
of invalids with imperfect osteogenesis on a tourist
exchange of people. As far as I know, only one person wanted to respond to such
unique opportunity to break borders between people and countries.
Articles about last
discoveries in treatmentof imperfect osteogenesis are also accessible to visitors of site Nostiog. Addresses of the Russian medical institutions in
which treat people with this disease also are published.
Unfortunately, as a result of
uneasy mutual relation between the Manager (the founder of a site) and its
visitors, there was heavy atmosphere which has resulted in crisis in work Nostiog. There is hope, that fruitful work all the same
will be continued. And we very much consider on your help, dear visitor of site
Nostiog! Only on you depends, whether site Nostiog will still live or this project should be closed.
We wish you happiness, feeling of confidence
in tomorrow and good luck!
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Svetlana K.
2006-12-25
The page is edited last time
© osteogenesis
imperfecta: dispoussr!
